Friday, March 20, 2009

March Update

Where to begin...

Zach has been home for a week - can't believe it!!! He's been on spring break and we've had a great time! He is going back today and once again, I'll go through withdrawal!

Jay went to the Hepatologist yesterday. She moved him "up" the list again...not far...to a 19, but up nevertheless. Kinda sad when you pray for bad numbers, but at least everyone understands why we do it! He is now 14th on the list, but since he was #4 in December, I don't put much stock in the whole "where you are on the list" scenario! He is horribly tired all the time (expected); has been experiencing liver pain (also expected); and has the worst leg cramps during the night from taking the diuretics. She gave him another medication in hopes of at least curbing the leg cramps...I have taken to buying more pickle juice than can be imagined! Good thing it comes in "sports bottles;" otherwise, he drinks it from the pickle jar! I need to buy stock in bananas as well!

She did tell him that he would be "transplanted this year," but once again, she told him in December that she thought he would be "transplanted over the holidays," so.... I trust her implicitly, but this is, no doubt, a numbers game.

He is still working, although each day seems to be more difficult. But he's been very smart and when he just can't do it anymore, he takes a partial day either by going in late or leaving early. He's usually asleep when I get home in the afternoons and then he's in bed between 7:00 and 7:30 each night. It's really weird...I can't imagine what people who are higher on the list are able to do (we found out yesterday that there's a person who's a 35 - the highest number with Baylor is 36!!!). Can you imagine?????

All is well otherwise...anyone got any great ideas for college funding?????

Love to you all,
Karen